A Quick Update

Unfortunately, we weren't able to get Katie to the U before Spring Break, which was all last week. We were able to speak with a manager at the Rehab department at the U before the break, and communicated Katie's needs and the urgency we feel to get her in to someone that has the clout to do something about it. There is a more urgent need: lately, her nerve pain has worsened and spread to the point where it is hard to endure the day. Also, a new symptom of not being able to breathe has set in. We think it's acid reflux related, but these episodes that just come and go are frightening -- not just for Katie but for her parents! Katie's never had acid reflux in her life, and we've only seen this in the past couple of weeks. Weird. It's a combination of things coming up, and her throat constricting completely closed. No air can pass through. We are sticking pretty close to our girl these days, as you can imagine.

Her official appointment with Dr. S-N has been moved up to early May (from June), which is a blessing we'll be thankful for, but we're hopeful that our phone call last week will move the needle on getting Katie seen even sooner than that. We feel very good about the program they have outlined for her. We just have to get her in and get it started!

She is hanging in there, thanks to your prayers and well-wishes and sweet gestures. We are getting pretty good at distractions; and Katie's sweetheart, Alex, comes often to cheer her up. Hearing Katie laughing with him is sweet music to our ears. He's awesome. How lucky are we to have the Gospel and all of you pulling for her? We are blessed. Please keep up the prayers and good thoughts. We are almost there.