We are back home after an early and intense morning. Katie was very symptomatic by the time we arrived at Primary Children's and the rehab room -- so, everyone got a pretty accurate view of what she's going through and what she deals with, symptom-wise, every day. Katie was seen by Dr. S-N and several other therapists that will be working with her. Katie's physical strength and stamina was assessed and there was quite a bit of visiting over what her health journey has been like so far, both physically and emotionally. We talked about her severe nerve pain: a more effective nerve pain medication than Gabapentin is being prescribed. (Thank heaven!!) And yes, they do want to admit her. It looks like Katie will be in good hands. They sent us home while they 'get the ducks in a row'... the bureaucratic fun of insurance pre-authorization. We expect to go back up Wednesday morning.
Katie slept the whole way home; no big surprise there!
So, between now and then? Rest and relaxation!! And we are gonna soak it up, too -- the hard work starts soon enough.
We are so thankful that this new chapter has finally begun for our girl.
Thank you for the update! We've been biting our nails waiting for the word. Hope you all are able to rest between now and then.
ReplyDeleteWow! I am so glad I just read this update. We will just keep praying. We are so pleased to see things going forward. Julie Maddox
ReplyDeleteJulie -- you guys brought over the *ultimate* comfort food tonight! A dish that goes perfectly with R & R. :-) Thank you so much. You're the best. ♥
DeleteI'm glad to hear that PCMC will be admitting Katie soon, I only wish it could have been today. Thank goodness for better meds to help Katie with her pain. Your family is in our prayers. Much love, The Hutchinson Family
ReplyDeleteI am so glad to hear that you have had some good news about better treatment. Our prayers are with y'all. Xoxo
ReplyDeleteDeb