Moving Forward

We felt pretty devastated when we got the news that the insurance denied Katie's case. The official reason they gave was they "didn't see that it would do any good." (!?) The head doctor of the pediatric rehabilitation argued with them, to no avail. WW, the rehab case manager, was on the phone with me a lot that day, helping me look at all options for Katie, the costs, and answering questions. Her compassion, patience, and taking time with me was a balm of Gilead on a very painful day. In fact, looking back, all those I called that day were angels to me, full of helpful insights, and tender feelings for our family and sorrow for another setback. Mary, Kelly, Mom -- thank you.

We have had heavy decisions to make in the past couple of days. We are following the old saying, "Pray as though no work will help, work as though no prayer will help." We have spent much time in prayer, seeking comfort, but also clarification on what to do now.  We have spent time researching and discussing remaining treatment options available to Katie, all the while, 'listening' with our hearts and souls on what feels right and praying for confirmation...

We have made that decision. We are moving forward. We are taking Katie up to Primary Children's Monday morning.

Katie must have care. There is too much suffering at this point, and her health is deteriorating. Getting her better nerve pain medications and teaching her ways to deal with this pain has to happen. Getting her body stronger is key to any kind of recovery. I am completely convinced that this physical therapy program is the best care available to my daughter. I am also convinced that now is the time that she must have it. I feel peace about these things. I have no idea what's coming next. I don't know what the next few weeks will bring.

We will move forward with faith.